Navigating Parenthood: A Guide for New Parents of Children on the Autism Spectrum
Congratulations on embarking on the journey of parenthood! Discovering that your child is on the autism spectrum may bring about a range of emotions and challenges, but with the right support and resources, you can navigate this path successfully. In this guide, we’ll explore psychological conditions to cope with, practical steps to take, available resources, and ways to connect with parent groups.
Psychological Conditions to Cope With:
- Shock and Denial: It’s common to feel shocked or in denial after receiving a diagnosis. Allow yourself time to process your emotions and come to terms with the diagnosis.
- Guilt and Blame: Parents may feel guilty or blame themselves for their child’s condition. Remember that autism is not caused by parenting practices.
- Anxiety and Stress: The uncertainty of the future and the challenges of parenting a child with autism can lead to increased anxiety and stress.
Practical Steps to Take Things Forward:
- Educate Yourself: Learn about autism spectrum disorder (ASD) to better understand your child’s strengths and challenges.
- Early Intervention: Seek early intervention services such as speech therapy, occupational therapy, and behavioral therapy to support your child’s development.
- Create a Structured Environment: Children with autism often thrive in structured environments. Establish routines and visual schedules to help your child navigate daily activities.
- Advocate for Your Child: Be your child’s advocate in educational settings, healthcare, and community services. Ensure they receive the support they need to succeed.
- Encourage Communication: Explore different forms of communication such as speech, sign language, or augmentative and alternative communication (AAC) to help your child express their needs and preferences.
Resources Available:
- Local Support Services: Connect with local autism organizations, support groups, and service providers for information and assistance.
- Online Resources: Explore reputable websites, forums, and social media groups dedicated to autism parenting for tips, advice, and community support.
- Parent Training Programs: Participate in parent training programs that offer guidance on managing challenging behaviors and promoting your child’s development.
- Therapeutic Services: Access therapeutic services such as counseling or support groups to address your own emotional needs and coping strategies.
Connecting with Parent Groups:
- Attend Support Meetings: Participate in local support group meetings where you can connect with other parents facing similar challenges and share experiences.
- Join Online Communities: Engage with online forums and social media groups for ongoing support, information exchange, and networking.
- Seek Mentorship: Connect with experienced parents of children with autism who can provide guidance, empathy, and practical advice based on their own experiences.
Conclusion: Parenting a child on the autism spectrum can be both rewarding and challenging. By educating yourself, seeking support, and advocating for your child, you can help them reach their full potential. Remember to prioritize self-care and seek assistance when needed. You’re not alone on this journey.
Actionables:
- Schedule appointments with specialists for early intervention services.
- Research local autism support groups and attend meetings.
- Create a visual schedule or routine for your child.
- Set aside time for self-care and relaxation.
Further Reading:
- “The Complete Guide to Asperger’s Syndrome” by Tony Attwood
- “Ten Things Every Child with Autism Wishes You Knew” by Ellen Notbohm
- “Autism Breakthrough: The Groundbreaking Method That Has Helped Families All Over the World” by Raun K. Kaufman
Checklist:
- Research local support services and organizations.
- Establish a structured routine for your child.
- Reach out to other parents for support and advice.
- Take time for self-care and emotional well-being.
Contribution to MEDA Foundation: Consider making a donation to the MEDA Foundation to support their efforts in providing resources and assistance to individuals and families affected by autism spectrum disorders.
Remember, every child with autism is unique, and with patience, love, and support, you can help your child thrive.
Here is a quick list for reference and to get started, if the parents are in Bangalore.Â
North Bangalore:
- Spastics Society of Karnataka (Malleswaram)
- Action for Autism (RT Nagar)
- Child Rehabilitation Centre (Yelahanka)
- Prasanna Autism Center (Hebbal)
- The Association of People with Disability (Hebbal)
- Center for Autism and other Disabilities Rehabilitation Research and Education (CADRRE) (Yelahanka)
- Rainbow Centre for Children with Special Needs (RT Nagar)
- ACTS Institute (Yelahanka)
- Samarthanam Trust for the Disabled (Yeshwanthpur)
- Mathru Foundation (Malleswaram)
Central Bangalore:
- NIMHANS Centre for Well Being (Hosur Road)
- Spandana Centre for Child with Special Needs (Koramangala)
- Child Rights Trust (Wilson Garden)
- Adarsh Rehabilitation Centre (Shivajinagar)
- Association for the Mentally Challenged (AMC) (Wilson Garden)
- The Earth Saviours Foundation (Koramangala)
- Akshadhaa Foundation (Koramangala)
- Pratham Special Education Centre (Richmond Town)
- Little Steps Therapy Services (Langford Town)
- Sneha Kiran Rehabilitation Centre (Shivajinagar)
South Bangalore:
- Asha Centre for Autism (Jayanagar)
- AADI Centre for Disabled Children (Basavanagudi)
- Vidya Sagar Center for Special Needs (Jayanagar)
- Association of People with Disability (APD) (Jayanagar)
- Swabhava Trust (Basavanagudi)
- Ability Unlimited (Banashankari)
- New Horizon Center for Children with Autism (Bannerghatta Road)
- Swastik Autism Center (Jayadeva Hospital)
- Neev Child Development Centre (JP Nagar)
- Kid Engage (Bannerghatta Road)
- MEDA Foundation (BTM Layout)
East Bangalore:
- Vikasana Centre for Education and Development (Whitefield)
- Sai Vidya Centre for Special Needs (Indiranagar)
- Ummeed Child Development Center (Marathahalli)
- PRERANA Center for Autism (Whitefield)
- Satya Special School (Whitefield)
- Blue Rose Learning Centre (Whitefield)
- We CAN Autism Centre (Indiranagar)
- V-Excel Educational Trust (Indiranagar)
- Comprehensive Learning Solutions (Marathahalli)
- CATCH Centre for Autism Therapy, Counselling & Holistic Development (Indiranagar)