Building Trust, Not Control, in Autism Support

Challenging behaviour in autism is not a problem to be fixed but a signal to be understood, a language of unmet needs and unspoken emotions. By shifting from punishment to partnership, from control to co-regulation, and from compliance to connection, families, educators, and professionals can transform crises into opportunities for growth. Rooted in respect for neurodiversity, dignity, and autonomy, true progress comes when environments adapt and relationships empower—when every child is seen not as their behaviour but as a whole human being capable of thriving.


 

Building Trust, Not Control, in Autism Support

Building Trust, Not Control, in Autism Support

Challenging behaviour in autism is not a problem to be fixed but a signal to be understood, a language of unmet needs and unspoken emotions. By shifting from punishment to partnership, from control to co-regulation, and from compliance to connection, families, educators, and professionals can transform crises into opportunities for growth. Rooted in respect for neurodiversity, dignity, and autonomy, true progress comes when environments adapt and relationships empower—when every child is seen not as their behaviour but as a whole human being capable of thriving.

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Intended Audience and Purpose of the Article

Audience

This work is crafted for those who stand at the intersection of care, education, therapy, advocacy, and community-building for autistic individuals:

  • Parents & Family Members who live the day-to-day realities of supporting an autistic loved one and are often the first to witness and respond to challenging behaviours.
  • Educators & School Leaders seeking to make classrooms inclusive without sacrificing learning outcomes for any child.
  • Therapists & Support Workers who require a balance of evidence-based interventions and compassion-driven practice.
  • Social Entrepreneurs & Nonprofit Practitioners designing programs and services that respond to real needs, not assumptions.
  • Policy Advocates & Administrators responsible for creating frameworks that enable—not hinder—autistic individuals’ participation in society.

The audience includes both seasoned professionals and those newly introduced to autism support, recognising that meaningful change requires a coalition of understanding and action across roles and sectors.

Purpose

The purpose of this article is not merely to explain what challenging behaviour is, but to fundamentally shift the lens through which it is understood and addressed. For too long, behaviour in autism has been viewed in isolation—treated as a problem to suppress rather than a message to interpret. This approach fails both the individual and the community.

Here, we aim to:

  1. Demystify Challenging Behaviour
    Reveal its underlying causes—sensory, emotional, cognitive, environmental—so responses move beyond punishment and compliance to understanding and prevention.
  2. Provide a Structured Framework
    Introduce practical tools such as Functional Behaviour Assessment, environment mapping, and replacement skill teaching, so intervention is systematic and measurable rather than improvised and inconsistent.
  3. Bridge Science and Empathy
    Draw from evidence-based strategies while grounding them in compassion, ensuring support plans uphold dignity, autonomy, and identity.
  4. Highlight Systemic Responsibility
    Emphasise that behaviour is not an isolated “child problem” but a shared outcome influenced by home, school, community, and policy environments. Solutions must therefore be multi-layered and collaborative.
  5. Equip for Action
    Move from theory to clear, repeatable steps—giving caregivers and professionals a pathway to respond in-the-moment and design long-term change without burning out.
  6. Protect Neurodiversity
    Ensure behavioural improvement does not come at the cost of authenticity, individuality, or emotional safety. The goal is not to “normalise” but to enable participation, self-expression, and mutual respect.

In essence, this article is both a field guide and a mindset shift. It is for anyone ready to replace reaction with reflection, frustration with strategy, and short-term fixes with lifelong empowerment. By the end, the reader will not only have a plan for addressing challenging behaviour but also a renewed commitment to seeing the person—not just the behaviour—at the heart of every interaction.

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Introduction: Challenging Behaviour as a Call for Support, Not Punishment

Reframing the Narrative

For many parents, teachers, and caregivers, moments of challenging behaviour can feel like the breaking point—disruptive, exhausting, and sometimes even frightening. The instinctive human response is often to see such behaviours as deliberate acts of defiance or “bad attitude,” triggering cycles of blame, discipline, and frustration.

But this lens is deeply flawed. In the context of autism, challenging behaviour is almost never about malice—it is about meaning. Every action, no matter how disruptive, is a form of communication, especially when verbal expression is limited or processing differences make conventional interaction difficult. When we shift our perspective from “How do I stop this?” to “What is this telling me?”, we unlock the possibility for sustainable change.

Reframing the narrative means replacing punitive reflexes with investigative curiosity. It means recognising that our role is not to “fix” the person but to decode the message, adapt the environment, and build skills that allow the individual to navigate life with more ease and less distress. This is not softness—it is strategic compassion, rooted in both science and respect.

Defining “Challenging Behaviour”

In autism contexts, “challenging behaviour” typically refers to actions that interfere with learning, daily living, safety, or social relationships. These can include:

  • Aggression (hitting, biting, pushing)
  • Self-injury (head-banging, scratching)
  • Property damage (throwing, breaking items)
  • Intense emotional outbursts (meltdowns, screaming)
  • Extreme withdrawal (refusal to engage, hiding)

However, the problem with the term itself is that it frames the person as the challenge, rather than the mismatch between their needs and their environment. What is “challenging” to one observer may simply be an autistic individual’s attempt to self-regulate or escape an overwhelming situation.

Why standard approaches fail:

  • They often focus solely on stopping the behaviour rather than understanding its root cause.
  • They prioritise compliance over autonomy, leading to suppression rather than skill-building.
  • They neglect environmental factors such as sensory overload, unclear communication, or unpredictable routines that may be triggering the behaviour.
  • They ignore the individual’s developmental stage, emotional capacity, and coping skills.

A narrow focus on punishment or control may temporarily stop the behaviour but does nothing to reduce the underlying distress. Over time, this can escalate the behaviour, damage trust, and harm mental health.

Why This Matters

Challenging behaviour is not a minor inconvenience—it can profoundly affect every area of life:

Quality of Life:
For the autistic person, unresolved distress can turn everyday environments—classrooms, workplaces, even family gatherings—into battlegrounds of anxiety and misunderstanding.

  1. Relationships:
    When behaviour is misunderstood, trust between the autistic individual and their caregivers or peers can fracture. Misinterpretation fuels resentment, isolation, and even stigma within families and communities.
  2. Inclusion:
    In schools, workplaces, and public spaces, challenging behaviour can become a barrier to participation, not because of the behaviour itself, but because environments are not adapted to support different ways of processing and responding.
  3. Mental Health:
    Constant behavioural suppression without addressing root causes can lead to depression, heightened anxiety, and burnout—not just for the autistic individual, but for those who care for them.

Understanding why this matters forces us to see challenging behaviour not as a “discipline problem” but as a social, emotional, and systemic challenge. If we get this wrong, we risk alienating the very people we are trying to support. If we get it right, we create the conditions for growth, trust, and inclusion—for everyone involved.

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The Behaviour Iceberg: Seeing Beyond the Surface

In most cases, what we label as challenging behaviour is only the visible tip of a much larger structure of needs, experiences, and processing differences. Like an iceberg, the real mass lies hidden beneath the surface—unseen but shaping everything above the waterline. If we focus only on what we can see, we risk applying quick fixes to symptoms while ignoring the root causes.

Behaviour as Communication

For many autistic individuals—especially those with limited or developing verbal skills—behaviour becomes the most immediate and reliable means of self-expression. When language fails, behaviour speaks, often loudly and urgently.

  • Meltdowns may signal sensory overload or emotional flooding.
  • Aggression may mean “I need space” or “I can’t do this right now.”
  • Refusal or withdrawal may mean “I’m overwhelmed” or “I don’t understand the expectations.”
  • Self-injury can sometimes be an attempt to regulate intense internal discomfort or to regain a sense of control.

Just as we would not punish a fire alarm for ringing, we should not punish a person for signalling distress—especially when behaviour is their only available alarm system. Our task is to decode the message, not silence it.

Unpacking Triggers

What sets off challenging behaviour is rarely random. In autism, the triggers often link to a mismatch between the individual’s needs and their environment. Some of the most common include:

  1. Sensory Overload
    Bright lights, loud noises, strong smells, crowded spaces—sensory input can pile up until the nervous system is in crisis.
    Example: A child who bolts from assembly may be escaping a wall of sound that feels physically painful.
  2. Unpredictability and Change
    Sudden schedule shifts, unfamiliar people, or unannounced transitions can create anxiety or confusion.
    Example: A last-minute change from art class to sports may trigger an outburst—not from dislike of sports, but from the abrupt change.
  3. Anxiety and Emotional Regulation Challenges
    Internal stress, even from seemingly small challenges, can accumulate until behaviour “erupts” as a coping release.
  4. Task Demands and Cognitive Load
    Tasks that are too hard, too long, or poorly explained can overwhelm working memory and attention.
    Example: Repeated refusal to start a writing assignment may reflect difficulty with planning, sequencing, or fine motor demands—not laziness.
  5. Unmet Physical or Emotional Needs
    Hunger, fatigue, thirst, pain, or the need for reassurance can all fuel challenging behaviour when not recognised or addressed.

The more precisely we identify triggers, the better we can adapt environments and expectations to prevent escalation before it happens.

The Role of Autistic Processing Differences

Understanding why certain situations feel overwhelming or threatening to an autistic individual requires recognising the ways in which their brain processes information differently.

  1. Social Processing
    Many autistic individuals interpret language literally, miss subtle social cues, or find rapid back-and-forth conversation draining. Social misunderstandings can therefore feel like hostile encounters.
  2. Cognitive Processing
    Some process information more slowly, needing extra time to understand instructions or adapt to changes. Others have hyper-focused attention and may resist shifting to a new activity.
  3. Sensory Processing
    The nervous system may be hypersensitive (amplifying sensory input to uncomfortable levels) or hyposensitive (requiring stronger input to register). A child who shouts or stomps may not be “acting out” but seeking proprioceptive feedback to feel grounded.
  4. Emotional Processing
    Emotional regulation skills may lag behind chronological age, meaning stress responses can appear “immature” to outsiders, when in fact they are developmentally appropriate for the individual’s emotional profile.

When we fail to account for these differences, our interpretations of behaviour can be wildly inaccurate. A refusal may be read as defiance when it is actually confusion; an outburst may be seen as disrespect when it is really self-preservation.

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III. Building a Behaviour Lens: Functional Understanding Over Labels

If the “behaviour iceberg” helps us understand that what we see is only a fraction of the full picture, then building a behaviour lens is about learning to see why the behaviour happens—and what purpose it serves for the autistic individual. This shift from labelling (“disruptive,” “defiant,” “lazy”) to understanding function is essential for creating interventions that actually work and preserve dignity.

Functional Behaviour Assessment (FBA)

At its core, Functional Behaviour Assessment is the process of gathering data to understand the why behind a behaviour. One of its most widely used frameworks is the ABC model:

  1. Antecedent (A):
    What happens before the behaviour?
    • Time of day, activity, location, people present.
    • Instructions given, transitions, sensory conditions.
    • Emotional or physical state of the individual.
  2. Behaviour (B):
    The specific observable action—not an interpretation.
    • Instead of writing “He was aggressive,” write “He hit the desk twice with his hand.”
    • This helps avoid bias and keeps records factual.
  3. Consequence (C):
    What happens after the behaviour?
    • Removal of a task, gaining attention, escape from a sensory input.
    • Whether the reaction reinforces the behaviour (intentionally or unintentionally).

By tracking multiple ABC cycles over time, patterns emerge. For example, you might see that a child’s outbursts occur mostly after loud group work and result in being sent to a quiet room—suggesting the behaviour serves to escape overwhelming noise.

Identifying Behaviour “Functions”

Once the ABC patterns are clear, the next step is to determine the function of the behaviour. This does not mean moral judgement; it means understanding the goal of the action from the individual’s perspective. Common functions include:

  1. Escape/Avoidance
    • Purpose: To get away from an activity, demand, or environment that feels overwhelming or unpleasant.
    • Example: Leaving the classroom during math because the task is too complex or anxiety-inducing.
  2. Attention-Seeking
    • Purpose: To gain interaction from adults or peers—positive or negative.
    • Example: Throwing a pencil to get the teacher’s focus.
  3. Access to Tangible Items or Activities
    • Purpose: To obtain something desired (a toy, snack, preferred activity).
    • Example: Crying until allowed to use a tablet.
  4. Sensory Regulation
    • Purpose: To meet sensory needs (stimulating or calming).
    • Example: Hand-flapping to self-soothe, or banging an object for auditory feedback.
  5. Self-Regulation / Emotional Release
    • Purpose: To manage intense emotions or internal states.
    • Example: Screaming when frustrated because verbal problem-solving isn’t accessible in the moment.

Importantly, a single behaviour can have multiple functions depending on context—so guessing without data risks misinterpretation.

Tools for Observation and Reflection

Practical tools make it easier to gather reliable data and reflect on it objectively. Some proven options include:

  1. Behaviour Journals
    • A daily log for noting ABC patterns, triggers, and responses.
    • Helps track whether strategies are reducing the behaviour over time.
  2. Environment Mapping
    • Diagramming physical and sensory aspects of spaces where behaviours occur.
    • Reveals “hot spots” where triggers are common (e.g., noisy hallways, cluttered work areas).
  3. Staff Debriefing Templates
    • Structured forms for teams to reflect after incidents.
    • Encourages consistent, non-blaming discussions about what worked, what didn’t, and next steps.

When used consistently, these tools transform behaviour from something we react to into something we proactively understand and address.

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Understanding the Whole Individual: The Personal Ecology of Behaviour

Effective support for challenging behaviour in autism cannot be achieved through isolated incident management; it requires a holistic view of the person’s life circumstances, abilities, and internal world. This means shifting focus from what is happening to who it is happening to — and why. Just as an ecologist studies the interplay of species, climate, and habitat, so too must caregivers and educators study the “personal ecology” of behaviour.

Individual Profile Mapping

Every autistic person is a complex constellation of strengths, preferences, stressors, and needs. Mapping this profile helps predict, prevent, and respond to behaviour constructively.

Key elements to include in an Individual Profile Map:

  1. Interests & Strengths – Favourite activities, sensory comforts, and skills can be used as motivators or calming tools.
  2. Triggers – Specific sounds, textures, environments, or social demands that cause distress.
  3. Motivators – Rewards or positive experiences that encourage cooperation and learning.
  4. Communication Ability – Spoken language, AAC devices, sign language, or gesture use. Understanding expressive and receptive communication levels is critical.
  5. Health Status – Sleep quality, diet, allergies, gastrointestinal issues, seizures, and hormonal changes can profoundly influence behaviour.

Action Step: Create a one-page “Behaviour Ecology Snapshot” for each individual, regularly updated and shared across the care team.

Emotional Development and Trauma Sensitivity

Many autistic individuals experience trauma — not only from acute events but from chronic environmental stressors such as repeated misunderstandings, exclusion, and sensory assault. This “accumulated trauma” can manifest as hypervigilance, avoidance, or sudden outbursts.

Why trauma awareness matters:

  • Trauma can amplify sensory defensiveness.
  • It may cause distrust toward authority figures or certain environments.
  • Behaviour that appears “defiant” may actually be protective self-preservation.

Strategies for trauma-sensitive support:

  • Build predictable routines and safe spaces.
  • Allow extra processing time without pressure.
  • Use calm, non-threatening body language and tone.

Communication Breakdown and Learned Helplessness

When an autistic person repeatedly tries to communicate needs but is ignored, misunderstood, or punished, they may enter a cycle of learned helplessness — a state where they stop attempting to express themselves because experience has taught them it won’t work. This often leads to frustration-aggression cycles where unmet needs erupt into challenging behaviour.

Breaking the cycle:

  1. Validate all communication attempts — verbal, gestural, behavioural.
  2. Model alternative communication tools — visuals, devices, or simplified speech.
  3. Avoid “compliance over comprehension” approaches — aim for understanding, not forced submission.

Professional Insight: Communication is not just a skill set — it is a lifeline. If we block it, we force behaviour to carry the burden.

Key Takeaway:
Challenging behaviour is rarely random — it emerges from the interplay of personal history, biology, environment, and unmet needs. By understanding the whole person, we not only reduce behaviour crises but also build trust, autonomy, and dignity.

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Proactive Interventions: Designing for Prevention, Not Just Reaction

Structuring Environments for Predictability and Calm

  1. Visual Schedules & Social Stories – Use pictorial or written schedules to make upcoming events predictable and reduce anxiety.
  2. Consistent Routines – Establish daily rhythms that reduce cognitive load and help the individual anticipate transitions.
  3. Safe, Low-Stimulation Zones – Design sensory retreats with adjustable lighting, noise control, and calming tools.
  4. Environmental Cues – Use color coding, symbols, and clearly marked boundaries to guide movement and task flow.

Teaching Functional Replacement Skills

  1. Communication Supports – Introduce AAC devices, picture exchange systems, or sign language as alternatives to frustration-driven behaviours.
  2. Emotional Regulation Strategies – Model and teach calming routines such as deep breathing, progressive muscle relaxation, or “time-in” rather than “time-out.”
  3. Incremental Skill Building – Break down complex tasks into smaller, achievable steps with immediate reinforcement.
  4. Choice-Making Opportunities – Offer structured options to reduce power struggles and enhance autonomy.

Incorporating Interests and Strengths into Intervention

  1. Strength-Based Planning – Use hobbies and preferred activities as motivators for skill development.
  2. Themed Learning Modules – Build academic or life skills into special interest areas (e.g., train schedules for math, nature walks for science).
  3. Peer Inclusion via Shared Interests – Pair autistic individuals with peers who share their passions to foster natural socialization.
  4. Positive Identity Development – Celebrate strengths in public spaces (school displays, family gatherings) to boost self-esteem and belonging.

Key Principle: Prevention is not about controlling behaviour — it’s about creating conditions where challenging behaviours have fewer reasons to appear.

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Responding in the Moment: Safe, Respectful, and Regulated

The Science of De-escalation

  1. Understanding escalation curves – Recognising the phases: trigger → agitation → peak → recovery.
  2. Immediate priorities – Safety, dignity, and maintaining trust over “winning” the moment.
  3. Do’s and Don’ts:
    • Do: Reduce demands, use simple language, offer space, maintain non-threatening posture.
    • Don’t: Argue, overload with instructions, invade personal space, or react with visible anger.
  4. Environmental control – Reducing sensory input, moving to quieter areas, adjusting lighting or sound if possible.
  5. Body language awareness – Slow movements, open gestures, steady tone of voice.

Co-regulation Before Discipline

  1. Adult self-regulation – Breathing control, emotional detachment from the incident, focusing on the individual’s needs not personal offence.
  2. Emotional mirroring without escalation – Using calm tone and neutral expression to model regulation.
  3. Grounding techniques – Gentle prompts like offering a weighted object, rhythmic breathing cues, or sensory tools.
  4. Relationship preservation – Showing the individual they are still valued and safe, even in moments of intense behaviour.

Restorative Responses Post-incident

  1. Reconnection rituals – Greeting, acknowledging effort, or using shared humour once calm is restored.
  2. Repair over punishment – Discussing what happened in a way that builds understanding and trust.
  3. Collaborative reflection – Involving the individual in problem-solving alternative responses for future.
  4. Documenting without bias – Recording the incident factually for learning purposes, not as a behavioural “black mark.”
  5. Closing the loop with peers and staff – Preventing lingering resentment or misunderstanding in the surrounding community.

The Journey of Children with Autism and Communication

VII. Systemic Support: Aligning Teams, Families, and Policies for Lasting Change

Collaborative Planning Across Environments

  • Establish cross-setting communication channels (home, school, therapy, community) to ensure strategy consistency.
  • Use shared documentation tools such as Behaviour Support Passports and Action Plans accessible to all stakeholders.
  • Hold periodic joint review meetings to assess progress, troubleshoot challenges, and update strategies.
  1. Parent and Caregiver Empowerment
  • Provide practical skills workshops on behaviour understanding, communication supports, and sensory regulation.
  • Offer emotional resilience programs for caregivers, acknowledging the mental health toll of ongoing behaviour management.
  • Connect families with peer support groups and advocacy networks to reduce isolation and increase confidence.

Staff Training, Culture, and Consistency

  • Implement mandatory training in trauma-informed care, autism-informed practices, and low-arousal intervention techniques.
  • Foster a culture where every adult sees themselves as part of the solution, not just “behaviour specialists.”
  • Introduce policy-level safeguards to ensure interventions remain respectful, rights-based, and evidence-driven.

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VIII. Tracking Progress: From Surviving to Thriving

Moving Beyond Behaviour Charts

  • Shift measurement from simple “frequency of problem behaviours” to holistic growth indicators such as:
    • Self-confidence and willingness to try new tasks.
    • Functional communication skills—verbal, AAC, or gesture-based.
    • Ability to make meaningful choices and express preferences.
    • Participation in social, recreational, and community activities.
  • Use multi-modal assessment tools—combining observation, self-reports (where possible), caregiver feedback, and skill sampling.

Case Examples and Success Indicators

  • Showcase real-world transformations where consistent, thoughtful, and respectful strategies led to:
    • Reduction in anxiety-driven behaviours.
    • Increased self-advocacy and independence.
    • Stronger trust between the individual and their support team.
  • Highlight the timeline of change to emphasise that sustainable progress comes gradually, not overnight.

Avoiding the Compliance Trap

  • Challenge the misconception that quietness, stillness, or constant eye contact equals progress.
  • Recognise that over-compliance may mask fear, learned helplessness, or suppression of authentic behaviour.
  • Prioritise outcomes where the person feels safe to express needs—even if that means saying “no,” asking for breaks, or choosing alternatives.

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Ethical Foundations: Upholding Dignity, Identity, and Inclusion

  • A. Respecting Neurodiversity While Supporting Change
    • Recognising that behaviour is communication, not defiance.
    • Balancing skill-building with authentic self-expression — avoiding interventions that erase identity.
    • Understanding that “progress” means improved quality of life, not simply “fitting in.”
  • B. Autonomy and Advocacy
    • Encouraging children and young people to express preferences in a way that works for them — whether through speech, AAC, gestures, or other methods.
    • Embedding the principle of “nothing about me, without me” in all decision-making.
    • Advocating within systems (schools, health, policy) to ensure rights are respected and supported.
  • C. Building Cultures of Empathy
    • Creating environments where difference is expected, understood, and celebrated.
    • Moving beyond token inclusion toward systemic acceptance and belonging.
    • Equipping peers, educators, and the wider community to respond with patience, kindness, and curiosity instead of fear or control.

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Conclusion: Progress That Heals, Relationships That Empower

  1. Lasting Change Comes from Trust and Understanding
    True progress happens when we recognise that behaviour is communication. Environments that adapt to individual needs—not environments that demand compliance—foster genuine growth, confidence, and connection.
  2. A Call to Action for All Stakeholders
    Parents, educators, healthcare providers, employers, policymakers—every one of us plays a part in building systems that see beyond behaviours and into the human experience. By replacing pressure with partnership, we shift from crisis management to capacity building.
  3. Participating in the Larger Mission
    This is not just about helping one child or one family—it is about reshaping communities so they reflect empathy, dignity, and inclusion at every level.

🌱 Participate and Donate to MEDA Foundation

At MEDA Foundation, we work tirelessly to create inclusive, empowering environments for autistic individuals through education, employment support, and family capacity-building. Your contribution fuels:

  • Training programs that equip parents, teachers, and caregivers with practical, compassionate tools.
  • Therapy access so no child is left waiting for help.
  • Community inclusion projects that open pathways for friendship, purpose, and meaningful work.

🌟 Together, let’s transform challenging behaviour into empowered living.
👉 Donate or Get Involved: www.MEDA.Foundation

📚 Book References and Recommended Reading

  • Challenging Behaviour and Autism: Making Sense – Making Progress – Whitaker, Joy, Edwards & Harley
  • Uniquely Human: A Different Way of Seeing Autism – Barry M. Prizant
  • The Explosive Child – Dr. Ross Greene
  • The Reason I Jump – Naoki Higashida
  • No Fighting, No Biting, No Screaming – Bo Hejlskov Elvén
  • Lost at School – Dr. Ross Greene
  • Behaviour Solutions for the Inclusive Classroom – Beth Aune et al.
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